……that’s the joke around here now. We met early this morning at Dr. L’s office……Mr. LBB, me, and my in-laws.
I already knew that it wasn’t going to be all good news. I could already feel something growing in my pelvis area. That can never be good. Dr. L reviewed the scans yesterday and consulted with three different radiologists and two additional oncologists. He even called Dr. R at Loma Linda last night to discuss the results and get his opinion. That made me feel really good that so many people had their chance to opine (nice use of “opine,” right?!).
Here’s what the scan showed:
1. The tumors in my lungs have basically stayed the same…..but they aren’t worried about them so much. They could be scar tissue at this point and not cancerous anymore.
2. The lesion on my liver has neither grown nor shrunk……so they aren’t worried about that so much anymore.
3. The tumor in my lower pelvis area that had grown back since my hysterectomy (and removal of the huge tumor) has been reduced in size just a little…..but they expected it to be gone based on the amount of chemotherapy I’ve had so far.
4. There is a new 6.8 cm tumor higher in my pelvis that has obviously grown since my last scan in December. So that is what has been causing my pelvic pain.
Me: But nothing’s growing into my bladder or colon right?
Dr. L: No…nothing is near there.
Of course we got the facts:
1. My cancer is resistant to the current chemotherapy EMA-CO. They call that “chemorefractory”…..cells that don’t care that toxic chemicals have been pumped repeatedly at them.
2. Resistance is very rare.
Me: Seriously? I fall in to the “rare” and “we never see this” category? Are you going to do a case study on me?
So right now the consensus is to move to an even MORE aggressive chemotherapy called EMA-PA. I get new drugs on my menu of treats: cis-platinum and adriamycin. And I won’t even get my week off….I’ll start this Thursday.
My awesome mother-in-law drove the scans to Loma Linda this morning for Dr. R and his radiologist to review. She refused to hand them over to anyone but Dr. R’s nurse. She’s a force to be reckoned with.
I noticed that the scan results said “there is an abundant of matter seen throughout the colon, in keeping with constipation.” Well, thanks for noticing that YES I AM EXTREMELY constipated.
Other than that I am feeling great today. The Vincristine is messing with my nerves in my face again though….and anything I eat or drink burns going down. I think I need a milkshake…..like from McDonalds.
I just designed a new limited dress for Gicela to work on this morning…..Valentines dresses are all finished and being shipped. The girls are working hard on getting the spring line ready to launch in February. No rest for the weary around here! But that’s a joke….no one’s weary, or teary or anything but positive.
Dr. L is very hopeful….and I told him I’m MORE than hopeful. I know everything will work out exactly how it’s supposed to! He apologizes that my chemo days will be ALL day…..I tell him I like hanging out there. Nurse N was working on my schedule today gave me a prolonged hug….seriously like a minute long. It’s the only time I thought I might cry……I was so touched at how compassionate and sweet she was. Who can complain about chemotherapy when you get to hang out with these people!
Now for a hugely important decision…..what should I eat for lunch…..